Monday, May 30, 2011

ahh- back to writing!

Sorry friends, it has been a little while- I went out to dinner with 3 of my best friends, and one reminded me of this ol' blog, so I figured that I need to give it a little attention! Finally warm weather- the children no longer have cabin fever!! I have starting going back to school, along with getting certified to instruct sign language- through baby signing time, two hands productions! It has been exciting!

Aubrey is continuing to make gains, she is crawling around, and nothing on tables or on the floor is safe, to her it is all fair game! ( Tagen is actually handling it very well!) Aubrey wants to be walking more then anything, she just doesn't have the core strength/ balance- I tell her all the time " You will do it, I promise, be patient". She has about 50 signs, and is completely obsessed with baby signing time videos :) I wish she would sit in front of my flip video and do the signs so I can show them off to the world, because she makes her mama proud! Instead she just wants to eat the flip! I'm sure all the moms out there know what I am talking about when I say, when someone asks me how she is my eyes light up and I can not help but smile! I am getting nervous because she is getting older, so natural I am going to start thinking about classes and the perfect placement for her! Being in the special education Field in a school system it gets a little touch when you are on the other side, ahh Will I be able to handle everything?!? She has had a few drs. appts. and most of them have all gone very well, Cardiology- she does not need to go back for one year. Opthomology- She has a follow up, because they are saying she has small optic nerves which could effect the brain- so they might want a sedated MRI- and if they are small, she will be delayed, but reality, I am not a naive person; she is already delayed, but is a sedated MRI going to change the care we are giving her, because if it is not medically necessary to have done- I am not sure I want to put her through a sedated MRI. I do know that it is not invasive like surgery, but I do not want to put her through it, if it is just for "knowledge, or research"- anyone have any thoughts/know anything about this subject?? She will be going to see a "ENT" ears, nose, and throat doctor, because she has fluid in her ears, so she may need tubes- common yes I know, and better now then the loss of her hearing, yes, but my poor girly muffin- just something else to add to her accomplishments in her first few years! I wish I could capture everything about her and put it on here so all of you could see how happy, and how much of a joy she is. My Aubrey girl is a little diva with an attitude, and she has the "stank eye" down pat!!

Tagen turned 5 years old, yesterday and I wanted to cry- my son as grown up so much, and I sometimes worry he has had to grow up a little faster because of everything that has happened over the past year with Aubrey, It was so hard on Sam and I; I know that he picked up on it, and he never said it but I am sure it has been hard on him. He loves his sister more then anything, and I have to wonder if he knows what she went through this year. As much as Sam and I have tried very hard to not make Tagen feel as if he were on the back burner through our trying times, I can't help but wonder, if he ever felt that way. After yesterday's big birthday party I think he remembered how much we love him, and have not forgotten about him! Thank you everyone who came to his special day, and made it amazing for him. He woke up and said " I can't believe everyone who came to the house for my birthday party, and all the cool gifts I got". He appreciated everything! Tagen is in an integrated setting preschool, which means there are a handful of children with specials needs and then " peer models" one of the parents of a child with specials needs, came up to me and said, although Tagen is a bigger boy he is very kind, and treats my son so good, there are some children that are bigger then my son, and they are rough and makes him nervous, but not Tagen! The word proud does not describe the feelings I had, and it also made me realize that no matter what he will be there and understanding to Aubrey and her needs!!

Sunday, February 27, 2011

srping is on it's way isn't it?

man-o-man, this winter thing is starting to get to me!! I miss you sunshine, flip flops, cold drinks- and when I did not have to deal with bulky jackets, hats, gloves, runny noses!! OH please spring, wont you just come already!?
This winter has been a tough one, Aubrey was having some troubles with going to the bathroom, we found ourselves at the ER in Boston because she was not herself and we just couldn't not figure out why! why?? well the poor thing was so backed up and constipated the poor thing could barely move! We had her tested for Celiac disease, which usually makes people go to the bathroom all the time, it is a gluten allergy, but with down syndrome, and low muscle tone it can cause constipation. Aubrey also has some flat lining in her left year, when we had her ears tested, as of right now we do not know if her ears are not draining the wax, or if she has fluid in her mid ear, which could cause hearing loss, we will have her retested in the next month. Phewph, and there is more...
Aubrey has also started wearing sure step orthopedics on her little feeties!! She was having a hard time keeping control of her ankles, knees, and hips, these help stabilize her and she is doing an AMAZING job at standing. She should only need them for about 9 months, and they will help her to start walking which she so desperately wants to do! We had her 6 months post surgery appointment, and went better then we could have ever expected!! Her doctor does not need to see her for a year, and he said her heart sounds perfect, of course they will still monitor her, but they said it sounds amazing and the surgery was a perfect success!! Crazy to think it has already been 6 months goodness time really does fly!

My sweet little baby is becoming a little girl, her desire to be able to run around with her big brother, and play the games the other kids do, is so strong you can see the frustration as well as disappointment in her that she can not do those things yet- I feel for her because I know she wants to, and just can't right now, it breaks your heart as a parent knowing that it will come in time but right now there is nothing i can do to help her develop these skills any faster! My dear Aubrey it will come soon enough- and your frustrations will turn into pure joy, I promise!!
She is doing so many sings now, and she understands everything you are saying to her. She has become a little freshy pants, she knows what she wants, and if she doesn't get it look out world! Thats my girl!!!

Recently I have received kindergarten registration for Tagen- ahh full day- it brought tears my eyes it seems like just yesterday I found out i was pregnant with him! our early intervention PT, has brought up the option of Aubrey attending a class for 2 1/2 hours on a Thursday morning, when she turns 2!! My kids are just growing and I can't stop them!!!!