time flies*

Finally the sun came out and turned into a beautiful day! Tagen's last day of his first year of preschool is tomorrow.. oh boy- time flies, and I guess I never really thought about how fast the days, weeks, and years go by until I had Tagen. Aubrey had Early Intervention today ( she has a physical therapist that comes once a week) We love her physical Therapist, although today was her last day due to being on maternity leave- she'll be back in October. Her PT says she looks and is doing great, despite her low muscle tone which comes along with down syndrome, she is doing great. She has now mastered rolling over from both belly to back and back to belly, She understands the basics of what you say to her, example : do you want to eat? do you want more?.. things to that nature. We have been learning sign language, because for "typical" and children with a syndrome, it is good to start signing to them at a young age because it helps them start communicated earlier and faster. I don't quite think she knows her signs just yet, but I'm confident she will catch on, especially with the help of her big brother and her idol. On another note there is a certain therapy called hippo therapy which is when children with any diagnosis is entered in a program with PTs, OTs, and horse. Aubrey will be able to ride horses that are trained for therapy, it will help with muscle conditioning along with making her aware of her muscles by stimulation.

This month we have a few big appointments in Boston. One of these appointments is at the Down syndrome clinic in Children's Boston, she will see 6 doctors all in which specializes in children with Down syndrome. We are keeping our fingers crossed that these doctors will all say the same as her PT is saying. To think they have a specific clinic for children with down syndrome and have so many doctors that specialize in that area is amazing. The other appointment we have is with her cardiologist, and we will schedule her open heart surgery- scary?? you have no idea. Surgery- I never thought that one word would have such a huge impact on my life, sure other family members have had surgeries, I even did, but on my child- yikes. Knowing that not only are we getting a date for this surgery, we are coming closer and closer to the day, which again brings me back to time flies, it still seems like yesterday we got the news on how she needed the surgery. Yes I can't wait until it is over with and her little heart doesn't have to work in overload like she ran the Boston marathon everyday, but at the same time, its going to be the most difficult day for me, as I am sure it will be for the rest of the family.